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Data Safety & Ethics

All liquid (e.g. blood, serum, plasma, saliva, urine, cerebrospinal fluid) and solid (e.g. tissue biopsies, hair, bones) biospecimens are solely collected and stored at ICB-L for future research from volunteer donors or patients who have given prior consent.

Highest national and international standards (OECD Guidelines for "Biological Resource Center", ICH-GCP for clinical trials, ISBER best practice guidelines), data protection laws of the State of Schleswig-Holstein and recommendations of the National Council of Ethics are to be followed to ensure the safety of the samples and clinical data.
To protect the privacy of the donors and patients, all biospecimens and clinical data are stored, saved and evaluated pseudonymized, so that no direct link to personal data is possible.

After a positive vote of the ethics committee Lübeck, Schleswig-Holstein, samples and associated data may be distributed to third parties for research projects (i.e. to national and international research groups or industrial research partners) outside the UKSH and the University of Lübeck. The distribution of biospecimens and/or data to a third party is always anonymous, bearing no relation to personal data.